TY - JOUR
AU - Wong G.
AU - Kerr P.
AU - Hawley C.
AU - Tong A.
AU - McKenzie A.
AU - Polkinghorne K.
AU - Walker R.
AU - Tugwell P.
AU - Webster A.
AU - Pollock C.
AU - Strippoli G.
AU - Parker D.
AU - Johnson D.
AU - Chapman J.
AU - Howard K.
AU - Chadban S.
AU - Cass A.
AU - Craig J.
AU - Gallagher M.
AU - Crowe S.
AU - Chando S.
AU - Hill S.
AU - Perkovic Vlado
AB - <p>
Research aims to improve health outcomes for patients. However, the setting of research priorities is usually performed by clinicians, academics, and funders, with little involvement of patients or caregivers and using processes that lack transparency. A national workshop was convened in Australia to generate and prioritize research questions in chronic kidney disease (CKD) among diverse stakeholder groups. Patients with CKD (n=23), nephrologists/surgeons (n=16), nurses (n=8), caregivers (n=7), and allied health professionals and researchers (n=4) generated and voted on intervention questions across 4 treatment categories: CKD stages 1 to 5 (non-dialysis dependent), peritoneal dialysis, hemodialysis, and kidney transplantation. The 5 highest ranking questions (in descending order) were as follows: How effective are lifestyle programs for preventing deteriorating kidney function in early CKD? What strategies will improve family consent for deceased donor kidney donation, taking different cultural groups into account? What interventions can improve long-term post-transplant outcomes? What are effective interventions for post hemodialysis fatigue? How can we improve and individualize drug therapy to control post-transplant side effects? Priority questions were focused on prevention, lifestyle, quality of life, and long-term impact. These prioritized research questions can inform funding agencies, patient/consumer organizations, policy makers, and researchers in developing a CKD research agenda that is relevant to key stakeholders.
</p>

AD - Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, New South Wales, Australia. Electronic address: allison.tong@sydney.edu.au.<br/>Crowe Associates Ltd, Oxon, United Kingdom.<br/>Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, New South Wales, Australia.<br/>Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.<br/>Royal Prince Alfred Hospital, Sydney, New South Wales, Australia.<br/>Centre for Transplant and Renal Research, Westmead Hospital, Sydney, New South Wales, Australia.<br/>Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; Department of Nephrology, Concord Hospital, Sydney, New South Wales, Australia; Renal and Metabolic Division, The George Institute, Sydney, New South Wales, Australia.<br/>Queensland School of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia; Translational Research Institute, Brisbane, Australia; Metro South and Ipswich Nephrology and Transplant Services (MINTS), Brisbane, Australia.<br/>Centre for Health Communication and Participation, La Trobe University, Melbourne, Victoria, Australia.<br/>Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.<br/>Monash Medical Centre and Monash University, Clayton, Victoria, Australia.<br/>Centre for Health Services Research, The University of Western Australia, Perth, Western Australia, Australia.<br/>Renal and Metabolic Division, The George Institute, Sydney, New South Wales, Australia.<br/>Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; Renal Division, Kolling Institute, Sydney, New South Wales, Australia.<br/>Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; Diaverum Medical Scientific Office and Diaverum Academy, Lund, Sweden; Division of Nephrology and Transplantation, Amedeo Avogadro University of Eastern Piedmont, Italy; Department of Translational Medicine (Italy), University of Bari, Mario Negri Sud Foundation, Bari, Italy.<br/>Department of Medicine, University of Ottawa, Ottawa, Canada.<br/>Department of Renal Medicine, The Alfred Hospital, Melbourne, Victoria, Australia.<br/>Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, New South Wales, Australia; Centre for Transplant and Renal Research, Westmead Hospital, Sydney, New South Wales, Australia.
AN - 25943716
BT - American Journal of Kidney Diseases
DP - NLM
ET - 2015/05/07
LA - Eng
LB - R&M<br/>AUS
M1 - 2
N1 - Tong, Allison<br/>Crowe, Sally<br/>Chando, Shingisai<br/>Cass, Alan<br/>Chadban, Steve J<br/>Chapman, Jeremy R<br/>Gallagher, Martin<br/>Hawley, Carmel M<br/>Hill, Sophie<br/>Howard, Kirsten<br/>Johnson, David W<br/>Kerr, Peter G<br/>McKenzie, Anne<br/>Parker, David<br/>Perkovic, Vlado<br/>Polkinghorne, Kevan R<br/>Pollock, Carol<br/>Strippoli, Giovanni F M<br/>Tugwell, Peter<br/>Walker, Rowan G<br/>Webster, Angela C<br/>Wong, Germaine<br/>Craig, Jonathan C<br/>Am J Kidney Dis. 2015 May 2. pii: S0272-6386(15)00593-4. doi: 10.1053/j.ajkd.2015.02.341.
N2 - <p>
Research aims to improve health outcomes for patients. However, the setting of research priorities is usually performed by clinicians, academics, and funders, with little involvement of patients or caregivers and using processes that lack transparency. A national workshop was convened in Australia to generate and prioritize research questions in chronic kidney disease (CKD) among diverse stakeholder groups. Patients with CKD (n=23), nephrologists/surgeons (n=16), nurses (n=8), caregivers (n=7), and allied health professionals and researchers (n=4) generated and voted on intervention questions across 4 treatment categories: CKD stages 1 to 5 (non-dialysis dependent), peritoneal dialysis, hemodialysis, and kidney transplantation. The 5 highest ranking questions (in descending order) were as follows: How effective are lifestyle programs for preventing deteriorating kidney function in early CKD? What strategies will improve family consent for deceased donor kidney donation, taking different cultural groups into account? What interventions can improve long-term post-transplant outcomes? What are effective interventions for post hemodialysis fatigue? How can we improve and individualize drug therapy to control post-transplant side effects? Priority questions were focused on prevention, lifestyle, quality of life, and long-term impact. These prioritized research questions can inform funding agencies, patient/consumer organizations, policy makers, and researchers in developing a CKD research agenda that is relevant to key stakeholders.
</p>

PY - 2015
SN - 1523-6838 (Electronic)<br/>0272-6386 (Linking)
SP - 212
EP - 22
T2 - American Journal of Kidney Diseases
TI - Research Priorities in CKD: Report of a National Workshop Conducted in Australia
VL - 66
Y2 - FY16
ER -